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Nearly 1 in 10 Americans lives with a rare disease
(BPT) - Did you know that the same number of people die each year from idiopathic pulmonary fibrosis, or IPF, as breast cancer? And yet IPF, a rare and debilitating disease that causes permanent scarring of the lungs, is still relatively unknown. Fortunately, the focus on rare diseases like IPF is growing because they’...
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Igniting the conversation about rare diseases
(BPT) - Each year, people across the world are invited to join together to raise awareness about rare diseases. Unlike more common conditions such as diabetes and breast cancer, many of these diseases, as well as the people affected by them, are not recognized by their own awareness initiatives throughout the year. Yet for people living with rare diseases and their loved ones, the path to a confirmed diagnosis, adapting to new treatment regimens, and facing the day-to-day challenges of thes...
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Rare Disease Day 2013: Maintaining bone health in people with multiple myeloma
(BPT) - In honor of the sixth annual Rare Disease Day, celebrated on Feb. 28, it is important to drive awareness about some rare cancers that are many times undiagnosed until the cancer has already spread. One particular cancer, multiple myeloma, often goes undiagnosed until the disease has spread to the bone. Multiple myeloma is a cancer of the plasma cells, a type of white blood cell found in the bone marrow.  An estimated 70,000 people in the United States are currently living with multi...
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Cycling to help stop diabetes
(BPT) - The American Diabetes Association is challenging bicycle riders to be part of the movement to Stop Diabetes(R) by participating in the annual Tour de Cure(R), a cycling event to raise funds to help fight diabetes. Tour de Cure is a fun way to get out with your family, friends or co-workers and has routes designe...
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Rare diseases: Increasing awareness for better patient outcomes
(BPT) - Getting a diagnosis of any cancer can be frightening, but for those diagnosed with a rare cancer, the emotional toll can be much worse. For some of these patients, the journey to a correct diagnosis may take years, and once they receive an accurate diagnosis, it can be extremely difficult for these patients to find accurate information on their disease. One of the first things patients do is research everything they can about their illness, including connecting with someone who is al...
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national news
Stop force-feeding Guantanamo prisoners: Senator

A selection of lunch meals offered to detainees are displayed in a food preparation area at the U.S. Naval Base at Guantanamo BayBy Jane Sutton GUANTANAMO BAY U.S. NAVAL BASE, Cuba (Reuters) - U.S. Senator Dianne Feinstein urged the Pentagon on Wednesday to stop force-feeding hunger-striking prisoners at the Guantanamo Bay detention camp and called the practice "out of step" with medical ethics and international norms. Feinstein, a California Democrat who chairs the Senate intelligence committee, sent a letter to Defense Secretary Chuck Hagel, saying the Guantanamo force-feeding policy was also out of synch with policies in the civilian federal prisons. ...


2013-06-19 18:07:32 -0500
FBI says it uses surveillance drones on U.S. soil

Robert Mueller gestures at the U.S. Senate Judiciary Committee at an oversight hearing about the FBI on Capitol Hill in WashingtonBy David Ingram WASHINGTON (Reuters) - The United States uses drones for surveillance in some limited law enforcement situations, FBI Director Robert Mueller said on Wednesday, sparking additional debate about President Barack Obama's use of domestic surveillance. The acknowledgement came in response to questions from U.S. senators who said they wanted to know more about the federal government's increasing use of unmanned aircraft. "Does the FBI use drones for surveillance on U.S. soil?" Republican Senator Charles Grassley of Iowa asked during a Senate Judiciary Committee hearing. ...


2013-06-19 17:19:45 -0500
Murkowski becomes third Republican U.S. senator to back gay marriage

U.S. Secretary of State John Kerry sits next to U.S. Senator Lisa Murkowski during the Arctic Council Ministerial Meeting in KirunaBy Yereth Rosen ANCHORAGE, Alaska (Reuters) - U.S. Senator Lisa Murkowski of Alaska publicly backed gay marriage on Wednesday, becoming the third Republican senator to do so as she spoke out ahead of potentially landmark rulings from the Supreme Court on the issue. Murkowski, 56, wrote in an essay posted on her Senate website that her decision was swayed, in part, by meeting a lesbian couple from Anchorage, one of whom was in the National Guard, who had adopted four children. "This first-class Alaskan family still lives a second-class existence," Murkowski said in her essay. ...


2013-06-19 15:59:11 -0500
Baby-size burritos lead to unusual photos
America’s problem with portion size has sparked a strange new photo trend, one in which parents set their newborn babies alongside massive burritos on restaurant tabletops. According to the U.K.’s Daily Mail, a Mexican restaurant in Seattle, Wash., is saying that any diners who take photos of their babies next to one of the restaurant's [...]
2013-06-19 15:51:08 -0500