Matthew McGuill died 36 years ago at the age of 15, according to his sister, Roselyn MGuill Whitehead.
Matthew was one of the first diagnosed patients with Prader Willi Syndrone.
“The decision was difficult, but my mom and dad allowed them to use his body for science,” Whitehead said.
Prader-Willi Syndrome, or PWS, is the most common known genetic cause of life-threatening obesity in children.
Although the cause is complex it results from an abnormality on the 15th chromosome. It occurs in males and females equally and in all races.
On average, one in 15,000 can be afflicted with the syndrome.
“This walk is to remember him, but more importantly to bring awareness and understanding to this disease,” Whitehead said.
Participants in the walk will gather by the Refugio County Library and at 8 a.m. and walk to St. James Catholic Church and back to the park.
Anybody who would like to make a donation can do so directly to the Prader Willi Syndrome Foundation via their website: http://www.pwsausa.org/. Matthew was the son of J.S. and Margaret McGuill.